Monday, June 1, 2020

June 5, 2020 - Wellness and Remote Care for People with Parkinson's During the Coronavirus Pandemic

Join the UCSF Movement Disorder and Neuromodulation Center, in partnership with the Parkinson's Foundation, for a discussion about maintaining physical and emotional wellness with PD during the pandemic.

 Register Here: www.parkinson.org/UCSF 
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Monday, May 11, 2020

2020 Care Partner Summit

The 2020 Care Partner Summit | Cumbre Para Cuidadores is taking place this Saturday! 

The summit will take place virtually on Saturday, May 16th from 12:00 pm- 3:30 pm ET. This year’s Summit will focus on the unique journey of a care partner, with our theme: Planning for the Unpredictable Path of Parkinson’s Caregiving.

A timely topic during the COVID-19 pandemic, our speakers and care partners are ready to share their insight and encouragement to those caring for someone living with Parkinson’s disease (PD). We recognize the hard work that goes into caregiving and we want to create this space for them to share their life lessons, learn from each other and grow in their self-care skills.  

The summit will be online only, and individuals may register for English or Spanish https://www.cvent.com/d/7yqm3q. The Care Partner Summit will be focused on the following topics:
    • Cognitive Changes
    • Mental Health
    • Self-Care
    • Practical Planning
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Moving Day Follow Up

Last Saturday, the first-ever Moving Day - Virtual Walk took place as participants from around the world joined together to engage in virtual exercise sessions and hear emotional and inspiring stories from others in the PD community. The event streamed online on Facebook, YouTube and MovingDayWalk.org with just under 9,000 total views! You can watch the full event recording here and share with your networks. For more information, please visit www.movingdaywalk.org.  
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Tuesday, May 5, 2020

May 9th, 2020 - Virtual Moving Day

Please join the UCSF Parkinson's Centers this Saturday, May 9th for the Parkinson's Foundation Virtual Moving Day.  If you would like to join our team, you are more than welcome, or start your own team!

Please click on the link below to join the UCSF Movement Disorder Center team:

http://www3.parkinson.org/site/TR/MovingDayEvent/ParkinsonsFoundationHQ?team_id=49988&pg=team&fr_id=3127

MOVING DAY:

How to Join: The Moving Day virtual event will be streamed on Saturday, May 9 at 1 p.m. Eastern/10 a.m. Pacific on our Parkinson’s Foundation Facebook page and on the Moving Day website. “Like” the Parkinson’s Foundation Facebook page to get Moving Day – Virtual Walk updates and notifications.

Virtual Moving Day link - https://movingdaywalk.org/moving-day-virtual-walk/
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Tuesday, April 28, 2020

Moving Day® San Francisco - Virtual Walk

While we will not be able to move together in-person, the good news is that we will be moving together at Moving Day – Virtual Walk on Saturday, May 9.

The Parkinson's Foundation Moving Day® event, a walk for Parkinson’s, is a fun and inspiring fundraising event that unites families, friends and communities in the fight against PD. Participants include Parkinson’s patients, caregivers, families, friends, healthcare professionals, corporate leaders and teams who will join together to raise funds to support patient care and research initiatives to beat Parkinson’s.  Moving Day® highlights “movement” and exercise as a symbol of hope and progress because of its essential role in treating Parkinson’s disease. 

Join Us Virtually!!

For more information about the event and how to register, click here!
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PD Health @Home

The Parkinson’s Foundation is launching PD Health @Home, a series of virtual community engagement events beginning Monday, April 6th. Visit Parkinson.org/PDHealth for a full list of events. You can register for events of interest and put them on your calendar. Please join us for the following:

Mindfulness Mondays
  • Start your week with calmness, as you take part in guided relaxation techniques to help boost brain power and reduce stress. Sign up now.
Expert Briefings Tuesdays
  • Taking place in home offices across the nation, we will host webinars about the PD topics that matter most to you.  Sign up now.
Wellness Wednesdays
Take Time Thursdays
  • Choose from several virtual events taking place across local chapters. Engage with a PD expert on the topics that matter most to you ― from exercise, nutrition, stress management and more.  Sign up now!
Fitness Fridays
  • A free, PD-tailored 10-part fitness series with instructor Joellyn Fox, DPT, from the Dan Aaron Parkinson’s Rehab Center, Penn Therapy & Fitness at Pennsylvania Hospital will feature a new focus every week, from balance to coordination, posture and more. Videos will be released weekly, beginning Friday, April 10th through June 12th.  Watch now!
Moving Day
All spring Moving Day walks are going virtual on May 9th. For more information or to join us, please visit www.movingdaywalk.org.
COVID-19 Patient Information and Recommendation: 
General information and precautions related to COVID-19 can be found on the Foundation website here. 
Hospitalization Resources:
  • The PF offers Aware in Care kits for PD patients who find themselves in the hospital.  If you don’t have an Aware in Care kit, you can order one here: http://www.parkinson.org/Store.
  • Infections can have an effect on Parkinson’s symptoms and especially in hospital settings, adherence to your Parkinson’s medication schedule is important. 
  • Patients are encouraged to update their Medication Form and place the form and several days of their current medications (in the original bottle) inside of their Aware in Care kit bag. 
New Spanish Materials!
The Foundation has translated a few of their newly diagnosed resources in to Spanish to better reach people earlier with support and steps to take after a diagnosis (see below). Since many of the events scheduled for the spring are postponed, we wanted to let you know they have been now live online: https://www.parkinson.org/espanol/recursos-en-espanol.
La Fundación ha traducido algunos de nuestros recursos para recién diagnosticados con la enfermedad de Parkinson en español, para llegar a las personas de manera temprana con materiales de apoyo y pasos a seguir después de su diagnóstico (ver recursos abajo). Dado que muchos de los eventos programados para la primavera serán reprogramados, queríamos hacerle saber que han sido compartidos en línea y en vivo: https://www.parkinson.org/espanol/recursos-en-espanol. En nombre de la comunidad de Parkinson, gracias por su dedicación y trabajo!
Recién Diagnosticados:
·         Acerca de la enfermedad de Parkinson
·         5 pasos para vivir mejor con Parkinson a partir de hoy
·         Preguntos clave para su consulta médica
Available Resources:  As a reminder, the Foundation has a variety of resources available to support the PD community, including:
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Monday, February 10, 2020

Let's Talk About It: Symptoms Beneath the Surface

Saturday, March 28, 2020
9 a.m. to 1:30 p.m. 

There are many non-motor challenges associated with Parkinson’s disease that can affect not only the person with Parkinson’s, but also their care partners, families and friends. This program will provide participants with information on topics that are not always easy to discuss. From intimacy to impulse control disorders and constipation, this program will address the realities of these difficult topics and provide strategies and tools for coping as well as talking about them with healthcare providers and loved ones.
There is no charge to attend, but registration is required.



Event Date:



Event Location:
Mack Powell Event Center
2003 Howe Avenue
Sacramento, CA 95825
United States

Fees:
Free

Contact:
Sarah Osborne
california@parkinson.org
(661) 360-5544


For Registration, click here http://www3.parkinson.org/site/Calendar/366078558
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