PARKINSON'S FOUNDATION MOVING DAY 2021

 Please join us for Moving Day 2021!  Create your own team or feel free to join ours!

Information on the event can be found here:

https://movingdaywalk.org/event/moving-day-san-francisco/

Keep Moving!

UCSF Parkinson's Center

Hacia Adelante: Navegando el Mar del Parkinson

 “Hacia Adelante: Navegando el Mar del Parkinson”

Un programa virtual en línea que tiene lugar en la plataforma Zoom

 

Sábado 19 de septiembre de 2020, 9:30 a.m. – 12:00 p.m. PT

 

La Parkinson’s Foundation invita a personas con Parkinson, sus familiares y profesionales de salud a acompañarnos en el evento “Hacia Adelante: Navegando el Mar del Parkinson” el sábado 19 de septiembre de 2020. Es una oportunidad única para aprender y compartir como comunidad.

 

La conferencia cubrirá cómo prepararse para el futuro, cómo hacer decisiones médicas, y la manera en que la familia puede brindar un mejor cuidado. También tendremos un panel de discusión, sesiones de preguntas y respuestas, demostraciones de baile y ejercicios.

 

Conferencia gratuita en español, se transmitirá en vivo vía internet utilizando la aplicación de videollamadas Zoom. Le enviaremos instrucciones después de registrarse. Para inscribirse visita www.Parkinson.org/Conferencia.

 

¿Necesitas ayuda o más información, o es un nuevo usuario de Zoom? ¡Estamos aquí para ayudar! Llame a 1-800-473-4636 opción 3 o envíe un correo electrónico a aramirez@parkinson.org.

June 5, 2020 - Wellness and Remote Care for People with Parkinson's During the Coronavirus Pandemic

Join the UCSF Movement Disorder and Neuromodulation Center, in partnership with the Parkinson's Foundation, for a discussion about maintaining physical and emotional wellness with PD during the pandemic.

Register Here: www.parkinson.org/UCSF 

2020 Care Partner Summit

The 2020 Care Partner Summit | Cumbre Para Cuidadores is taking place this Saturday! 

The summit will take place virtually on Saturday, May 16th from 12:00 pm- 3:30 pm ET. This year’s Summit will focus on the unique journey of a care partner, with our theme: Planning for the Unpredictable Path of Parkinson’s Caregiving.

A timely topic during the COVID-19 pandemic, our speakers and care partners are ready to share their insight and encouragement to those caring for someone living with Parkinson’s disease (PD). We recognize the hard work that goes into caregiving and we want to create this space for them to share their life lessons, learn from each other and grow in their self-care skills.  

The summit will be online only, and individuals may register for English or Spanish https://www.cvent.com/d/7yqm3q. The Care Partner Summit will be focused on the following topics:

• Cognitive Changes
• Mental Health
• Self-Care
• Practical Planning

Moving Day Follow Up

Last Saturday, the first-ever Moving Day - Virtual Walk took place as participants from around the world joined together to engage in virtual exercise sessions and hear emotional and inspiring stories from others in the PD community. The event streamed online on Facebook, YouTube and MovingDayWalk.org with just under 9,000 total views! You can watch the full event recording here and share with your networks. For more information, please visit www.movingdaywalk.org.  

May 9th, 2020 - Virtual Moving Day

Please join the UCSF Parkinson's Centers this Saturday, May 9th for the Parkinson's Foundation Virtual Moving Day.  If you would like to join our team, you are more than welcome, or start your own team!

Please click on the link below to join the UCSF Movement Disorder Center team:

http://www3.parkinson.org/site/TR/MovingDayEvent/ParkinsonsFoundationHQ?team_id=49988&pg=team&fr_id=3127

MOVING DAY:

How to Join: The Moving Day virtual event will be streamed on Saturday, May 9 at 1 p.m. Eastern/10 a.m. Pacific on our Parkinson’s Foundation Facebook page and on the Moving Day website. “Like” the Parkinson’s Foundation Facebook page to get Moving Day – Virtual Walk updates and notifications.

Virtual Moving Day link - https://movingdaywalk.org/moving-day-virtual-walk/

Moving Day® San Francisco - Virtual Walk

While we will not be able to move together in-person, the good news is that we will be moving together at Moving Day – Virtual Walk on Saturday, May 9.

The Parkinson's Foundation Moving Day® event, a walk for Parkinson’s, is a fun and inspiring fundraising event that unites families, friends and communities in the fight against PD. Participants include Parkinson’s patients, caregivers, families, friends, healthcare professionals, corporate leaders and teams who will join together to raise funds to support patient care and research initiatives to beat Parkinson’s.  Moving Day® highlights “movement” and exercise as a symbol of hope and progress because of its essential role in treating Parkinson’s disease. 

Join Us Virtually!!

For more information about the event and how to register, click here!

PD Health @Home

The Parkinson’s Foundation is launching PD Health @Home, a series of virtual community engagement events beginning Monday, April 6th. Visit Parkinson.org/PDHealth for a full list of events. You can register for events of interest and put them on your calendar. Please join us for the following:

Mindfulness Mondays

• Start your week with calmness, as you take part in guided relaxation techniques to help boost brain power and reduce stress. Sign up now.

Expert Briefings Tuesdays

• Taking place in home offices across the nation, we will host webinars about the PD topics that matter most to you.  Sign up now.

Wellness Wednesdays

• Join us at noon for a Facebook Live event or a PD-related educational video that will highlight PD awareness, research or treatments.  Follow the Parkinson's Foundation on Facebook now. 

Take Time Thursdays

• Choose from several virtual events taking place across local chapters. Engage with a PD expert on the topics that matter most to you ― from exercise, nutrition, stress management and more.  Sign up now!

Fitness Fridays

• A free, PD-tailored 10-part fitness series with instructor Joellyn Fox, DPT, from the Dan Aaron Parkinson’s Rehab Center, Penn Therapy & Fitness at Pennsylvania Hospital will feature a new focus every week, from balance to coordination, posture and more. Videos will be released weekly, beginning Friday, April 10^th through June 12^th.  Watch now!

Moving Day
All spring Moving Day walks are going virtual on May 9^th. For more information or to join us, please visit www.movingdaywalk.org.
COVID-19 Patient Information and Recommendation: 
General information and precautions related to COVID-19 can be found on the Foundation website here. 
Hospitalization Resources:

• The PF offers Aware in Care kits for PD patients who find themselves in the hospital.  If you don’t have an Aware in Care kit, you can order one here: http://www.parkinson.org/Store.
• Infections can have an effect on Parkinson’s symptoms and especially in hospital settings, adherence to your Parkinson’s medication schedule is important. 
• Patients are encouraged to update their Medication Form and place the form and several days of their current medications (in the original bottle) inside of their Aware in Care kit bag. 

New Spanish Materials!
The Foundation has translated a few of their newly diagnosed resources in to Spanish to better reach people earlier with support and steps to take after a diagnosis (see below). Since many of the events scheduled for the spring are postponed, we wanted to let you know they have been now live online: https://www.parkinson.org/espanol/recursos-en-espanol.
La Fundación ha traducido algunos de nuestros recursos para recién diagnosticados con la enfermedad de Parkinson en español, para llegar a las personas de manera temprana con materiales de apoyo y pasos a seguir después de su diagnóstico (ver recursos abajo). Dado que muchos de los eventos programados para la primavera serán reprogramados, queríamos hacerle saber que han sido compartidos en línea y en vivo: https://www.parkinson.org/espanol/recursos-en-espanol. En nombre de la comunidad de Parkinson, gracias por su dedicación y trabajo!
Recién Diagnosticados:
·         Acerca de la enfermedad de Parkinson
·         5 pasos para vivir mejor con Parkinson a partir de hoy
·         Preguntos clave para su consulta médica
Available Resources:  As a reminder, the Foundation has a variety of resources available to support the PD community, including:

• HELPLINE: 1-800-4PD-INFO (473-4636) or helpline@parkinson.org
• PD Conversations, an online PD community, to connect with others living with PD and be part of a network of support. PDConversations.org
• Newly Diagnosed Kit
• Medical Alert Card
• Fact sheet:  Staying Safe in the Hospital with Parkinson’s Disease
• Aware in Care Kit
• Podcasts

Let's Talk About It: Symptoms Beneath the Surface

Saturday, March 28, 2020
9 a.m. to 1:30 p.m. 

There are many non-motor challenges associated with Parkinson’s disease that can affect not only the person with Parkinson’s, but also their care partners, families and friends. This program will provide participants with information on topics that are not always easy to discuss. From intimacy to impulse control disorders and constipation, this program will address the realities of these difficult topics and provide strategies and tools for coping as well as talking about them with healthcare providers and loved ones.

There is no charge to attend, but registration is required.

Event Date:

Saturday, March 28, 2020

Event Location:

Mack Powell Event Center
2003 Howe Avenue
Sacramento, CA 95825
United States

Fees:

Free

Contact:

Sarah Osborne

california@parkinson.org

(661) 360-5544


For Registration, click here http://www3.parkinson.org/site/Calendar/366078558

Mind, Mood and Motion - Bay Area

Mind, Mood and Motion - Bay Area

Saturday, November 23, 2019
9:30 a.m. — 1:30 p.m.
Check-in starts at 9 a.m.

Changes in thinking and memory can affect people with Parkinson’s and their care partners, family and friends. The "Mind, Mood, and Motion" program will teach participants about these changes and the steps they can take in their daily lives, including exercise, to reduce the effects these symptoms might have.

People with Parkinson's, their family, care partners, and anyone serving the Parkinson's community are invited to participate. There's no charge to attend, complimentary lunch is provided, and parking is free.

Speakers include Dr. Diviya Kaul, Movement Disorder Specialist, Kaiser Permanente and Lisa Oei, Doctor of Physical Therapy, PD Connect. Presenters include Rock Steady Boxing, San Francisco Ballet and Dance Moves Me. Join us for a day of learning, trying new things, and meeting your community!

For Registration, click here:
http://www3.parkinson.org/site/Calendar?id=105981&view=Detail&_ga=2.231307160.641642277.1572990683-66134822.1564419889


Event Date
Saturday, November 23, 2019

Event Location

Lafayette Veterans Memorial Center
3780 Mt. Diablo Boulevard
Lafayette, CA 94549
United States

Fees:

FREE
Contact Name:

Sarah Osborne
Contact Email:

sosborne@parkinson.org
Contact Phone

(661) 360-5544

THIS WEEKEND- Parkinson's Foundation "Women and Parkinson's Disease - East Bay"

"Women and Parkinson's Disease - East Bay"

Saturday, October 19, 2019
9 a.m. to 2 p.m.
Fremont Community Center

Join us for a day of discovery, knowledge and support.

Women experience Parkinson's disease (PD) differently than men. Learn about the needs of women with PD, how you can best communicate and be proactive as a woman with PD and as a care partner, and why we need women-centered research.

Women with Parkinson's are invited to attend and are welcome to bring a care partner or family member. 

Speakers: 

Caroline M. Tanner, MD, PhD
University of California, San Francisco

Maya Katz, MD
University of California, San Francisco

Program, lunch and refreshments are provided at no cost.

Registration is required and seating is limited.

Event Date

Saturday, October 19, 2019

 

Event Location

Fremont Community Center at Lake Elizabeth
40204 Paseo Padre Parkway
Fremont, CA 94538

Fees:

FREE

Contact Name:

Ann Boylan

pdwomeneastbay@gmail.com

Contact Phone

1-800-4PD-INFO (473-4636)

Gene Therapy Shows Initial Promise for Parkinson’s Disease

We are very excited that Chad Christine, MD, one of our UCSF Parkinson's research teams recently published some very promising work on gene therapy treatments for Parkinson's patients.

Below is copied from UCSF news, in a story written by Suzanne Leigh.


https://www.ucsf.edu/news/2019/03/413696/gene-therapy-shows-initial-promise-parkinsons-disease

2019 Moving Day- SF Success! 2019 Moving Day- San Jose- June 1!

Thank you for all those who supported and attended Moving Day- SF this past Sunday, May 5.  It was a spectacular event, and a great opportunity for patients, caregivers, family members, and community partners to join together to support exercise and activity in Parkinson's!

Don't forget that Moving Day- San Jose is coming up Saturday, June 1. 

https://movingdaywalk.org/event/moving-day-san-jose/

Moving Day 2019 is Coming!

It's that time of year when we start to organize our teams for the upcoming Parkinson Foundation Moving Day®,-Bay Area, a walk for Parkinson’s.  Our team at the UCSF Parkinson’s Disease and Movement Disorders Clinic, a Parkinson’s Foundation Center of Excellence is working with the Parkinson’s Foundation to produce another successful event.  We are currently establishing the UCSF PD Center walking team and hope you will be inspired to create your own team and join with the hundreds of other people walking and celebrating together!

Moving Day® is a fun and inspiring fundraising event that will unite families, friends, and communities in the fight against Parkinson’s disease. More than just a walk, Moving Day highlights the Parkinson’s Foundation belief in a better life until we have a cure for PD.  It focuses on “movement” and exercise as a symbol of hope and progress because of its essential role in treating the disease.   The funds raised by this event help support the Parkinson’s Foundation programs that are vital to the advancement of PD research and outreach at the national and local level.  We were fortunate to receive a 2018 grant from the Parkinson’s Foundation to fund a new outreach program:  Increasing Education and Resource Opportunities for Caregivers of Parkinson's Patients. Through this program we were able to connect with over 3000 PD caregivers in the Bay Area, and will be applying in 2019 to expand the reach of the program into more underserved areas.  This grant would not have been possible without the success of Moving Day.

REGISTER TODAY for either:  San Francisco - Sunday, May 5, 2019 or San Jose – Saturday, June 1, 2019.  You can find additional information at www.MovingDayBayArea.org.

Moving Day® features a unique Movement Pavilion, with stations such as yoga, Pilates, Tai Chi, PWR, LSVT Big, boxing, and dance — all proven to help manage the symptoms of Parkinson’s disease. The walks also feature a Resource Pavilion, which will include local medical and paramedical professionals like neurologists, physical therapists, social workers, and other community resources for patients and caregivers.  Included in the festivities are family-friendly walk routes of 1, 2, or 3 miles, a kids’ area, music, entertainment and much more. 

Thank you for your support of UCSF Parkinson’s Disease and Movement Disorders Clinic.  If you have any questions concerning Moving Day®, please reach out to walk coordinator, Gena Lennon at 415-963-0304 or email her at glennon@parkinson.org. 

PF Caregiver Symposium December 1, 2018

Registration is Now Open for our 2018 Caregiver Summit.
Please Help us spread the word!

There will be a local satellite stream of the presentation, held at:

Veterans Memorial Senior Center 

1455 Madison Avenue
Redwood City, CA 94061 

There is NO COST to attend, but registration is required as seating is limited.

Registration and breakfast: 7:30 a.m.
Program: 8 a.m. - 1:30 p.m.

A big part of making life better for people with Parkinson’s is taking care of the people who care for them. Here at the Parkinson’s Foundation, we recognize the work you are doing to support your loved one and have dedicated a day just for you. Join us for the Parkinson’s Foundation Caregiver Summit | Cumbre Para Cuidadores on Saturday, December 1, 2018 broadcast live from Phoenix, Arizona to satellite locations around the country. Focusing on Collaborative Care, the 2018 Parkinson’s Foundation Caregiver Summit | Cumbre Para Cuidadores is a free event specifically for caregivers of people living with Parkinson’s disease (PD). Bilingual sessions, in English and Spanish, will include: Intimacy and PD, Communication & Coping Strategies, and Collaborative Caregiving in Action. Planning to join in-person? The Caregiver Summit | Cumbre Para Cuidadores will be taking place at the Sheraton Grand at Wild Horse Pass, Phoenix, Arizona. Click here to register today! Can’t make it to Arizona? No problem! Satellite locations across the country will broadcast a LIVE webcast of the summit (in English and Spanish). Many locations will also provide local programming, with select locations providing Parkinson’s disease respite care or programming for your loved ones with Parkinson’s disease. Click on one of the following satellite locations below to register today: Please select your preferred location for more details. Event times vary. *Spanish translation will be available at all sites. Bay Area, CA Columbus, OH Fargo, ND Jacksonville, FL Kansas City Area Manhattan, KS Milwaukee, WI Minneapolis, Area, MN Orange County, CA Rochester, NY San Diego, CA South Florida Area St. Petersburg Area, FL Syracuse, NY Tampa, FL Prefer to join from the comfort of home? For those who wish to participate from anywhere else around the globe, the summit is also available via live stream for caregivers and will be recorded and archived for later viewing. Register Now in English or Spanish to join us from a personal computer, tablet or phone. Learn more at Parkinson.org/Summit or by calling the Parkinson’s Foundation Helpline at 1-800-4PD-INFO (1-800-473-4636). Made possible by presenting sponsor ACADIA Pharmaceuticals Inc.