Tuesday, April 28, 2020

Moving Day® San Francisco - Virtual Walk

While we will not be able to move together in-person, the good news is that we will be moving together at Moving Day – Virtual Walk on Saturday, May 9.

The Parkinson's Foundation Moving Day® event, a walk for Parkinson’s, is a fun and inspiring fundraising event that unites families, friends and communities in the fight against PD. Participants include Parkinson’s patients, caregivers, families, friends, healthcare professionals, corporate leaders and teams who will join together to raise funds to support patient care and research initiatives to beat Parkinson’s.  Moving Day® highlights “movement” and exercise as a symbol of hope and progress because of its essential role in treating Parkinson’s disease. 

Join Us Virtually!!

For more information about the event and how to register, click here!
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PD Health @Home

The Parkinson’s Foundation is launching PD Health @Home, a series of virtual community engagement events beginning Monday, April 6th. Visit Parkinson.org/PDHealth for a full list of events. You can register for events of interest and put them on your calendar. Please join us for the following:

Mindfulness Mondays
  • Start your week with calmness, as you take part in guided relaxation techniques to help boost brain power and reduce stress. Sign up now.
Expert Briefings Tuesdays
  • Taking place in home offices across the nation, we will host webinars about the PD topics that matter most to you.  Sign up now.
Wellness Wednesdays
Take Time Thursdays
  • Choose from several virtual events taking place across local chapters. Engage with a PD expert on the topics that matter most to you ― from exercise, nutrition, stress management and more.  Sign up now!
Fitness Fridays
  • A free, PD-tailored 10-part fitness series with instructor Joellyn Fox, DPT, from the Dan Aaron Parkinson’s Rehab Center, Penn Therapy & Fitness at Pennsylvania Hospital will feature a new focus every week, from balance to coordination, posture and more. Videos will be released weekly, beginning Friday, April 10th through June 12th.  Watch now!
Moving Day
All spring Moving Day walks are going virtual on May 9th. For more information or to join us, please visit www.movingdaywalk.org.
COVID-19 Patient Information and Recommendation: 
General information and precautions related to COVID-19 can be found on the Foundation website here. 
Hospitalization Resources:
  • The PF offers Aware in Care kits for PD patients who find themselves in the hospital.  If you don’t have an Aware in Care kit, you can order one here: http://www.parkinson.org/Store.
  • Infections can have an effect on Parkinson’s symptoms and especially in hospital settings, adherence to your Parkinson’s medication schedule is important. 
  • Patients are encouraged to update their Medication Form and place the form and several days of their current medications (in the original bottle) inside of their Aware in Care kit bag. 
New Spanish Materials!
The Foundation has translated a few of their newly diagnosed resources in to Spanish to better reach people earlier with support and steps to take after a diagnosis (see below). Since many of the events scheduled for the spring are postponed, we wanted to let you know they have been now live online: https://www.parkinson.org/espanol/recursos-en-espanol.
La Fundación ha traducido algunos de nuestros recursos para recién diagnosticados con la enfermedad de Parkinson en español, para llegar a las personas de manera temprana con materiales de apoyo y pasos a seguir después de su diagnóstico (ver recursos abajo). Dado que muchos de los eventos programados para la primavera serán reprogramados, queríamos hacerle saber que han sido compartidos en línea y en vivo: https://www.parkinson.org/espanol/recursos-en-espanol. En nombre de la comunidad de Parkinson, gracias por su dedicación y trabajo!
Recién Diagnosticados:
·         Acerca de la enfermedad de Parkinson
·         5 pasos para vivir mejor con Parkinson a partir de hoy
·         Preguntos clave para su consulta médica
Available Resources:  As a reminder, the Foundation has a variety of resources available to support the PD community, including:
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Monday, February 10, 2020

Let's Talk About It: Symptoms Beneath the Surface

Saturday, March 28, 2020
9 a.m. to 1:30 p.m. 

There are many non-motor challenges associated with Parkinson’s disease that can affect not only the person with Parkinson’s, but also their care partners, families and friends. This program will provide participants with information on topics that are not always easy to discuss. From intimacy to impulse control disorders and constipation, this program will address the realities of these difficult topics and provide strategies and tools for coping as well as talking about them with healthcare providers and loved ones.
There is no charge to attend, but registration is required.



Event Date:



Event Location:
Mack Powell Event Center
2003 Howe Avenue
Sacramento, CA 95825
United States

Fees:
Free

Contact:
Sarah Osborne
california@parkinson.org
(661) 360-5544


For Registration, click here http://www3.parkinson.org/site/Calendar/366078558
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Tuesday, November 5, 2019

Mind, Mood and Motion - Bay Area



Mind, Mood and Motion - Bay Area

Saturday, November 23, 2019
9:30 a.m. — 1:30 p.m.
Check-in starts at 9 a.m.

Changes in thinking and memory can affect people with Parkinson’s and their care partners, family and friends. The "Mind, Mood, and Motion" program will teach participants about these changes and the steps they can take in their daily lives, including exercise, to reduce the effects these symptoms might have.

People with Parkinson's, their family, care partners, and anyone serving the Parkinson's community are invited to participate. There's no charge to attend, complimentary lunch is provided, and parking is free.

Speakers include Dr. Diviya Kaul, Movement Disorder Specialist, Kaiser Permanente and Lisa Oei, Doctor of Physical Therapy, PD Connect. Presenters include Rock Steady Boxing, San Francisco Ballet and Dance Moves Me. Join us for a day of learning, trying new things, and meeting your community!

For Registration, click here:
http://www3.parkinson.org/site/Calendar?id=105981&view=Detail&_ga=2.231307160.641642277.1572990683-66134822.1564419889


Event Date
Saturday, November 23, 2019

Event Location

Lafayette Veterans Memorial Center
3780 Mt. Diablo Boulevard
Lafayette, CA 94549
United States

Fees:

FREE
Contact Name:

Sarah Osborne
Contact Email:

sosborne@parkinson.org
Contact Phone

(661) 360-5544
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Thursday, October 17, 2019

THIS WEEKEND- Parkinson's Foundation "Women and Parkinson's Disease - East Bay"




"Women and Parkinson's Disease - East Bay"

Saturday, October 19, 2019
9 a.m. to 2 p.m.
Fremont Community Center

Join us for a day of discovery, knowledge and support.

Women experience Parkinson's disease (PD) differently than men. Learn about the needs of women with PD, how you can best communicate and be proactive as a woman with PD and as a care partner, and why we need women-centered research.

Women with Parkinson's are invited to attend and are welcome to bring a care partner or family member. 

Speakers: 

Caroline M. Tanner, MD, PhD
University of California, San Francisco

Maya Katz, MD
University of California, San Francisco

Program, lunch and refreshments are provided at no cost.
Registration is required and seating is limited.

Event Date

Event Location
Fremont Community Center at Lake Elizabeth
40204 Paseo Padre Parkway
Fremont, CA 94538
Fees:
FREE
Contact Name:
Ann Boylan
pdwomeneastbay@gmail.com
Contact Phone
1-800-4PD-INFO (473-4636)
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Thursday, June 6, 2019

Gene Therapy Shows Initial Promise for Parkinson’s Disease




We are very excited that Chad Christine, MD, one of our UCSF Parkinson's research teams recently published some very promising work on gene therapy treatments for Parkinson's patients.

Below is copied from UCSF news, in a story written by Suzanne Leigh.


https://www.ucsf.edu/news/2019/03/413696/gene-therapy-shows-initial-promise-parkinsons-disease
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Thursday, May 9, 2019

2019 Moving Day- SF Success! 2019 Moving Day- San Jose- June 1!




Thank you for all those who supported and attended Moving Day- SF this past Sunday, May 5.  It was a spectacular event, and a great opportunity for patients, caregivers, family members, and community partners to join together to support exercise and activity in Parkinson's!

Don't forget that Moving Day- San Jose is coming up Saturday, June 1. 

https://movingdaywalk.org/event/moving-day-san-jose/



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